Eleanor Smith (an old friend and creator of "Concrete Change") sent these brilliant thoughts to me via email. She said I could repost them here.
"Taking off from the word “bed ridden”, in the past I contemplated editing a book to be called “Bed Riding.” Your post could have been a chapter! Kudos for touching on things no one else is writing about.
There was a guy (“bed rider”) I knew tangentially who was unable to be out of bed -- not in a wheelchair or anything that would cause his body to be bent toward sitting position. He was active in the movement, an organizer, held many meetings in his bedroom. On a strong frame a few feet above his face, aimed straight down at him, was a computer/tv etc. he was able to use. (The thought of it used to make me recoil, but in reality I guess it’s no more dangerous than the ceilings we all have above our heads.)
I’m quite a bit less mobile than I used to be, can’t jump around in bed to reach things. I have set up my little environment down to the inch. I drop multiple things. Sometimes I can recover them with my sundry methods, tools and things I make into tools."
We watch Alone also! not sure we are caught up....resting and butt care are essential to quality of life. You are NOT irrelevant!
Thank you, Marilyn! I do like Alone, but I have to close my eyes when they skin the bunnies.
Your work is important to me. Don't forget.
And yours to me!
Crips are more relevant than ever. Even if some "super-achievers" don't know it yet. I love "Alone"!
Yep. To everything you just wrote. All of it.
CONSIDER asking for help?
Update: I did ask for help. I'm amazing, right? Hah.
Looking forward to reading that novel!
Thank you, Jain. I did find help for it and hope to restore the momentum. I mean, it's not like I have all the time in the world to get it done.
Butt care **is** essential and working twice as hard for a lifetime earns you some chances to rest.
Right. I always forget that part, the part about having worked twice as hard with those pesky, fragile, always breaking off muscle fibers.
Lovin' this pretty hard.
Thank you, Rebecca.
Yes you are!
You are one of the most relevant people I know.
Thank you, dear Sarah.
"BED RIDER"
Eleanor Smith (an old friend and creator of "Concrete Change") sent these brilliant thoughts to me via email. She said I could repost them here.
"Taking off from the word “bed ridden”, in the past I contemplated editing a book to be called “Bed Riding.” Your post could have been a chapter! Kudos for touching on things no one else is writing about.
There was a guy (“bed rider”) I knew tangentially who was unable to be out of bed -- not in a wheelchair or anything that would cause his body to be bent toward sitting position. He was active in the movement, an organizer, held many meetings in his bedroom. On a strong frame a few feet above his face, aimed straight down at him, was a computer/tv etc. he was able to use. (The thought of it used to make me recoil, but in reality I guess it’s no more dangerous than the ceilings we all have above our heads.)
I’m quite a bit less mobile than I used to be, can’t jump around in bed to reach things. I have set up my little environment down to the inch. I drop multiple things. Sometimes I can recover them with my sundry methods, tools and things I make into tools."